Patient data saves lives and improves outcomes and yet researchers are struggling to access patient data. This workshop will bring together data access bodies – the controllers/guardians of patient data – for a collective discussion. The aim of the workshop is for the patient voice to help the organisations find solutions.
Confirmed chair & speakers:
- Alex Bailey, Programme Manager, Regulatory Support Centre, Medical Research Council
- Mike Birtwistle, Founding Partner, Incisive Health – workshop Chair
- Phil Booth, Coordinator, MedConfidential
- Garry Coleman, Service Director (ai), Data Dissemination, NHS Digital
- Kirsty Irvine, Chair, Independent Group Advising on Release of Data, NHS Digital
- Tariq Malik, Lead for Office for Data Release, Public Health England
- Janet Messer, Director of Approvals Service, Health Research Authority
- Richard Stephens, Patient Advocate, use MY data
- Richard Welpton, Senior Data Manager, The Health Foundation
- Amanda White, Director of Communications and Engagement, Health Data Research UK
This workshop is aimed at patients, relatives and carers, the public and professionals and is open to all who are interested.